About Prader-Willi Syndrome
PWS is a complex genetic disorder that manifests with intellectual and development delays, and a variety of symptoms including an insatiable appetite, the health implications of which can be serious. Inattention to the unique environments required by those with PWS could be life-threatening and special education may also be necessary. Our interdepartmental approach to care helps individuals with PWS thrive because of our educational, residential, vocational, clinical and wellness programs. Latham Centers prides itself in addressing these challenges within a safe and healthy environment.
Compassion & Understanding
Prader-Willi Syndrome
This syndrome involving abnormalities of chromosome 15 occurs approximately 1 in 18,000 births and is found in all races and ethnic groups. In some cases, PWS can also be acquired by head trauma. Among the more serious symptoms are mild to moderate developmental disabilities, emotional and behavioral problems, obsessive-compulsive behaviors such as skin picking, and slow body metabolism, which can lead to obesity and related health problems
“Our daughter has had an incredible opportunity to become part of such an inclusive community where PWS is just a part of life. We learn to celebrate all of the wonderful things she is capable of, while recognizing and addressing her needs as well.” ~ Latham Parent
Expertise in Treatment and Care
Latham Centers, in conjunction with leaders in the field, works collaboratively with families and professionals to determine the best approach for PWS care. The team at Latham Centers is able to engage multiple highly trained and specialized doctors on all aspects of the syndrome—including program initiatives, program review, and clinical and medical consultations—for the children and adults we serve.
Innovation & Excellence
To learn about PWS Care, read our Tips of the Week posted by Patrice Carroll, Latham Centers’ PWS Specialist. As part of our innovative and comprehensive approach to PWS treatment, we also offer Donkey Therapy, Lifelong Pet Care, Latham Works, and other programs that help our residents enjoy life to the fullest and grow through experiences and interactions. For more information, we recommend these sites:
- National Prader-Willi Syndrome Association (USA)
- Prader-Willi Syndrome Association of New England
- Foundation for Prader-Willi Research
- International Prader-Willi Syndrome Organization
For Prader-Willi special education, the Latham Centers staff develops the right approach for each person. Follow our blog, or give us a call to learn more.
Please see this informational piece by Latham’s Patrice Carroll.
"And they said my child would never..." video made by Latham Centers.
LivingHealthy With PWS Newsletter
LivingHealthy with PWS Cookbook Series
Published by Latham Centers
Written for the community of parents and caregivers of those with Prader-Willi syndrome (PWS), this cookbook is a complete resource for planning nutritious, delicious meals for individuals with PWS, and it includes tips and advice from experts in the field.
Latham School:
Reaching for the Future
At Latham School, children from 8 years to young adults of 22 years are under the care of a special needs teacher and aide. In small home room classes of eight or fewer students. …Read more.
Latham Centers:
Safe Passage to Adulthood
While some Latham children return home to family or enroll in programs closer to home, others may transition to our Adult Programs or remain on Cape Cod to live independently …Read more.
Ways to Give
You can Make a Difference
A gift to Latham Centers will make a difference in the life of each and every individual we serve. To make it as easy as possible for you to donate, we offer a variety of gift vehicles …Read more.